by Mark White | Dublin, Ireland
Goal: Transformation of epilepsy care in Ireland through a model of Advanced Nursing Practice.
Epilepsy is a chronic disease characterized by unpredictable, sometimes lifelong, often dangerous seizures which result in involuntary alterations in behaviour and consciousness. The condition affects about one in every 100 people and is second only to stroke as the commonest chronic neurological disorder in Europe. Of the 40,000 sufferers in Ireland (10,000 0f whom are under 16 years), only about 70% are well controlled on medication, leaving about 12-15,000 people who have breakthrough seizures, and are in regular contact with secondary and tertiary hospital services. The condition kills about 130 people per year. Many patients with epilepsy suffer from mental health problems, and the condition has significant implications for social, vocational and occupational aspirations. Services in Ireland are delivered through various models of private & public care, lead professionals, care pathways, models and standards of care. This has resulted in many patients and clients recieving varying standards of care, advice and access to appropriate professional advice,management and the latest evidenced based treatment regimes.