Problem

Epilepsy is a chronic disease characterized by unpredictable, sometimes lifelong, often dangerous seizures which result in involuntary alterations in behaviour and consciousness. The condition affects about one in every 100 people and is second only to stroke as the commonest chronic neurological disorder in Europe. Of the 40,000 sufferers in Ireland (10,000 0f whom are under 16 years), only about 70% are well controlled on medication, leaving about 12-15,000 people who have breakthrough seizures, and are in regular contact with secondary and tertiary hospital services. The condition kills about 130 people per year. Many patients with epilepsy suffer from mental health problems, and the condition has significant implications for social, vocational and occupational aspirations. Services in Ireland are delivered through various models of private & public care, lead professionals, care pathways, models and standards of care. This has resulted in many patients and clients recieving varying standards of care, advice and access to appropriate professional advice,management and the latest evidenced based treatment regimes.

Comments

I am interested in the decisions of the Care Challenge and how this innovation can be spread to the USA.

Leah Kinnaird December 05, 2011

Excellent Project

frank morrison December 05, 2011

This is an excellent, creative and pragmatic solution to the provision of care for service users suffering from epilepsy in Ireland

James O'Shea December 06, 2011

Great stuff, this will make such a difference... keep up the good work.

Barry Mc Carthy December 06, 2011

Very innovative worthwhile project

Denise Leahy December 06, 2011

Great project

Finola Doran December 06, 2011

Excellent and commendable project

Helen O'Connell December 06, 2011

It is very encouraging, motivating and uplifting to see this type of innovation being driven by dedicated and devoted nurses. I have no doubt that the planned services will greatly enhance the lives and care experiences of people living with epilepsy and their families. We need more projects like this globally

Mairead Murphy December 06, 2011

This project will benefit patients, clients, families and the economy on so many levels.

Jane Bishop December 06, 2011

This is an excellent idea, and standardising the care of people with epilepsy would make a huge difference in the lives of individuals living with this chronic condition, particularly the 30% or so percent that are living with seizures.

Agnes Mooney December 06, 2011

Great to witness a project of this nature and quality

Grainne Gilgunn December 08, 2011

There is great potential, through this innovaion, to improve the quality of life for this vulnerable group. Good luck with its implementation, it will make a significant difference on many levels.

Raphael Mc Mullin December 16, 2011

This is a very worthwhile and innovative model of care which will greatly improve the quality of life for Epilepsy sufferers, and support their families and carers.

Raphael Mc Mullin December 16, 2011

This is an important initiative that warrants implementation.

Robert Coen December 22, 2011

The Epilepsy Research Ireland team are dedicated to find a cure for epilepsy by raising awareness and money for research. And as an epilepsy sufferer (and new dad) this brings hope to me and my family Keep up the great work.

Jamie Scott December 22, 2011

Excellent, timely and important for patients and their families

David Henshall December 22, 2011

Good work...!

Loyal Sequeira December 22, 2011

Best of luck with this commendable project. There are a huge number of people who will benefit hugely from its success

Fergal Ryan December 22, 2011

I wasn't aware of how common a problem it is in Ireland. And of the number of sufferers with sub-optimal control. When I teach a class on chronic disease management 4th year medical students rarely if ever mention epilepsy though they all mention stroke. An initiative to raise awareness among the public and the medical profession while also aspiring to improve the quality of care delivery is indeed worthy of support.

Anthony Cummins December 22, 2011

Integrated co-ordinated care is to applauded. Well done and I hope the initiative translates into improved outcomes for all.

Kevin Quinn December 22, 2011

Excellent project - gets my vote

David Webb December 22, 2011

Best of luck - sounds great

Ann Brennan December 22, 2011

This project is the best. You have my full support.

Carlos Portera-Cailliau, MD-PhD December 22, 2011

Great innovative project which will mprove the quality of life for epilepsy patients and their loved ones.

Christina Doyle December 23, 2011

Excellent work

Joe Clarke December 23, 2011

Very badly needed project best of luck

Brian Geraghty December 23, 2011

This is certainly innovative and the provision of such a model of care would aim to provide a seamless pathway ensuring quality researched based care ensuring the best outcomes.

Inderjeet Kaur December 24, 2011

Great cause, great idea, well done all involved

ruairi Conroy December 30, 2011

I would wholeheartedly endorse such an initiative - congrats on the foresight!

Michael Brady January 03, 2012

An important development for patients and their families and indeed for the nursing profession in pushing the boundaries of practice.

Seamus Cowman January 04, 2012

Excellent project. A very creative way to help improve the quality of life of epilepsy patients.

Padraig De Faoite January 04, 2012

I definitely approve this measure.

Peter Newman January 05, 2012

Bravo, Saby!

Bajric Ismet January 12, 2012

Brilliant Initiative! regards, Soledad

Soledad Graf January 13, 2012

Very Pro-Active, Very innovative, Majestic change, to a very neglected area of Health Care. Very Brave, Mr White. Very Positive.

Kenny Marsh January 15, 2012

Congratrulations to all involved in the development of ther Epilepsy Care Programme in Ireland. This is an excellent model of nursing for delivering care to persons with epilepsy. Innovation of delivery into advanced practice is excellent.

Marie Carney January 16, 2012

Sounds amazing...

Conor Dennison January 16, 2012

A very commendable programme.

Irene Coveney January 17, 2012

Wholeheartedly support this project.

Enda Wyley January 19, 2012

Deserves every possible support

Tomás Mac Eoin January 20, 2012

This important project gets my vote.

Patricia Hurl January 23, 2012

We have to offer different models of care to ensure we capture and deliver an epilepsy service which is responsive and effective to patients. This project looks like it can do this-having met the team, I think they can achieve it in practice.

Yvonne Leavy January 24, 2012

This is a novel way of managing a chronic disease in a sensible, cost-effective way. It is unreasonable to expect PWE not to have access to expert advice and opinion. Not enough Consultant Neurologist????Advanced Nurse Practice is the answer!!! I hope other Health Care systems copy and paste this model.....Nok

Nok Wayambe January 24, 2012

At last a simple, low-cost, highly effective solution to the problem of access that sufferers of epilepsy experience when trying to interact with a neurology service. Well done the national epilepsy service of Ireland!!!

Dr. James Reilly January 24, 2012

This project has a very "common sense" approach to it, providing a very patient friendly programme within the community. I definitely support this project

Margaret O'Leary January 24, 2012

I am delighted to be able to support this great cause.

Gerry White January 25, 2012

A wonderful innovative and integrated response. Well done. This programme has my full support.

Kae Slattery January 25, 2012

Fantastic innovation, well done to all involved. I hope this model will be used to develop similiar innovations in others areas of chronic disease. Marie

Marie Laste January 25, 2012

This is a very progressive initiative as in creating an additional resource delivered by Advance Nurse Practitionersit throughout the country, it will speed up access to services for those who need them and who currently may be experiencing delay in accessing such services. It is worthy of everyone support.

John O'Connor January 25, 2012

This project is right at the heart of what patient focused healthcare should be, well done to all involved.

Nessa Doyle January 25, 2012

The concept of advancing the efficiency of epilepsy care in Ireland through a model of Advanced Nursing Practice for this complex condition is timely and a valuable asset to managing patients who are diagnosed with epilepsy.

Cathriona Greene January 25, 2012

A great innovation of benefit to patients.

Eileen O'Leary January 25, 2012

Very innovative project, well done Mark.

Dr. Margaret Denny January 25, 2012

Well done, a great innovative, person-centered approach to delivering care.

Deirdre Mulligan January 26, 2012

Bridie Mooney January 26, 2012

The focus on standardising care to enhance quality and better outcomes for patients is important. Wishing you every success with your advanced programme.

Eileen Whelan January 26, 2012

Great example of how nurses can lead the way to better patient/client services particularly in the area of chronic illness management. Well done Mark.

Miriam Cass January 27, 2012

Well done, this programme has my full support

Marian Crosby January 27, 2012

An excellemnt programme, the access and cover of all the regions regardless of geographical location is very welcome.

Catherine Hughes January 27, 2012

This project similar to the other clinical care programmes will improve care for patients and their families and will better utilise scare resources. it is brilliant to see a national programme leading out with such a Nurse led and provided service.

Avilene Casey January 27, 2012

Having worked in the National Society of Epilepsy in the UK in the past its great to see patient centered focus for epilepsy coming to Ireland. Best of luck!

eamonn mullan January 29, 2012

A great initiative to deliver quality , advanced care for patients .

Marian Kiernan January 30, 2012

What a great project you have started in Ireland. Nurses leading in the provision of care for people with Epilepsy! Consultants just seeing Patients who have complex needs!! great piece of work!

George O'Neil January 30, 2012

A very worthwhile approach that works towards all patients getting evidenced based standarised care well done and good luck with it.

Catherine Tobin January 30, 2012

An impressive and valuable, innovative project that will promote effective epilepsy care in the community. Professor John Wells, Department of Nursing, WIT

Dr. Margaret Denny January 30, 2012

great initative for the benifit of patients,well done.

annette kennedy February 20, 2012

Hugely significant innovation which will have a significant impact on the quality of life of over 37,000 people with epilepsy in Ireland

Peter Murphy March 07, 2012

As an epilepsy for the past 20years and only controlled in the last year, I know how important it is for care of nurses to be brought to attention. It sounds like a fantastic idea

April McCabe March 07, 2012

This excellent patient centred project will benefit eplipsy care in the community. It is an example of how the Clinical Programmes are making a real difference to the way health services are delivered in Ireland.

Eilish Croke March 29, 2012

Excellent project, deserves support. Good luck

Ann Ryan March 30, 2012

Its time to see a patient centered focus for epilepsy get established to this level, and delivered at Nurse Practioner Level . Well done and Best of luck!

maggie bolger March 30, 2012

I met some of the Candidate ANPs for epilepsy last week in the RCSI in Dublin. What a fabulous, committed and friendly group they appear to be. They will make such a difference to people like me who suffer with Epilepsy. I am so looking forward to having one named professional in Co. Louth who I can ring and talk to and who will manage my care. Well done to all

Edward Walsh March 30, 2012

Fantastic Idea,

Ann Harris March 30, 2012

Excellent innovative work, especially with nursing leading the way on this project

Janet Murphy March 31, 2012

Fantastic project Mark, the very best of luck.

Debbie Kavanagh April 02, 2012

This integrated, multidisciplinary way of working is the way forward for management of many long term/continuing care/chonic disease programme - nationally and internationally. Excellent demonstration of clincial leadership for the working group involved and an excellent service for patients - where quality access and cost will be improved. Well done and best of luck with the Programme and the care challenge.

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